My mom, Gail Rauw, was diagnosed with ALS in July of 2018. She (“Nana”) had 6 beautiful grandchildren, whom she cherished. One of her granddaughters (my daughter), Ariella, was inspired to make a difference by raising both awareness and money for the ALS society. For Ariella’s 6th birthday (March 2019), she asked for donations in place of birthday gifts and raised over $630. For Ariella’s 8th birthday (March of this year), she once again asked for donations, and celebrated with a virtual painting party with friends (her Nana was a talented painter). Sadly, her Nana passed away that day. Ariella continued her advocacy mission, and reached out to the ALS society to support her endeavour. They quickly provided books, balloons, and bracelets, which Ariella brought to her class and distributed. She also started an “ALS club” for any classmates who wanted to know more about ALS. Ariella’s love for her Nana shines bright in many aspects of her life, and she is motivated to spread awareness of ALS.
My mom was an absolutely amazing grandma, mother, wife and friend. We miss her tremendously. We are so grateful for the support we received from the ALS society throughout her illness, as well as the support we continue to receive.