Hello my name is Dennis Rommel. I was diagnosed with ALS in December of 2020. I had been experiencing symptoms for 3-4 years. My mobility became quite challenged in 2018 that I had to go onto long term disability before I retired in the fall of 2019. After a fall at home and a 3 week stay at the Royal Alex Hospital in November 2020, I was originally thought to have PLS (Primary Lateral Sclerosis). Many tests occurred during my stay at the hospital (CT scan, MRI, blood work and nerve conduction tests at the Glenrose). When I left the hospital, I had to become used to using a wheel chair for my mobility. I had my first appointment at ALS clinic at the Kaye clinic on December 1, 2020. During that appointment, my diagnosed was changed to ALS. Came as a shock at first hearing the words, I'm now dealing with a different deck of cards. December 1st is also my Wedding Anniversary to my wife Lorna of 41 years. It was an emotional day for sure.
First and foremost, accepting the diagnosis and the why me situation. The team at ALS clinic are great, very thankful for their wonderful patient/doctor support.
Accepting what I've been dealt and appreciating every day. Things I first gave up was driving, my wife is now my designated driver.
Things we love to do, is taking holidays in Mexico, our last trip was to celebrate our 40th wedding anniversary in Puerto Vallarta.
We are hoping to travel to Nipawin, Saskatchewan this summer if COVID restrictions allow. Nipawin is where my wife and I were born, we moved to Edmonton in 1985. We are going to visit with family and friends. Also, we have a trip planned to Jasper, AB in September for my Birthday.
My main support system is my family, they have been great on daily basis always available to talk and just listen. The ALS Society have given me a ton of support. Helping with required needs for more independence and mobility. I am so thankful for all the support they continue to provide for me. Also surely appreciate the Coffee Group zoom meeting twice a month, it is great to connect with others that know what I am going through. We have a few good laughs & also tears, it is helpful sharing those emotions with other patients.
PLANS FOR THE FUTURE; just living each day to the best of my ability. Travelling this summer and spending time with family and friends. Looking forward to the Walk for ALS with family and a few friends. (of course socially distanced and safe)