Jenna’s Story … continued part 6

What Life is Like Now.

Well, it has been a ride and I am thankful to everyone who has joined in on my journey! We have been tackling challenges and are taking it day by day causing me to be a “fly by the seat of my pants kinda gal.” The strength and mobility in my arms and legs have proven to be a challenge and I have perfected what I like to refer to as the “floor ballet” aka the odd fall here and there. I have began using a walker to help my balance and reduce the amount of “ballet performances”. I continue to take my radicava infusions and am hopeful for new medicine trails to start soon.

We are doing our best to look for the simple joys and take advantage of the good days.

Our family is grateful to the Alberta ALS Society and all the support they continue to provide us. They have had a positive impact on my quality of life, providing me with items that I use daily that give me independence. Most recently, the ALS Society has provided me with a scooter as part of their equipment loaner program. The scooter will give me the freedom to go for walks this summer with my family. I will be able to make memories and be present with them; for this I will forever be grateful. They have also connected me with my zoom coffee group that consists of others across the province who have been diagnosed with ALS. The group is a wealth of knowledge, advice, perspective and a safe place to share honest and open feelings.

I have recently been asked to participate in upcoming ALS Research Projects. The outcomes of these projects will hopefully provide further insight and steps towards finding a cure for ALS.

The ALS Society has been so good to me and I know my days would be so much more challenging with out their support. They have been such a blessing and I am so grateful to all the support they receive from people like you. I first handedly see the impact in your donations and I thank you for that from the bottom of my heart.

~Jenna

To read more on Jenna’s Story, check out:

https://www.alsab.ca/news/2021/3/1/salsa-presents-the-als-project-jennas-story