Margaret Dow and Jim Brule began their ALS journey in June of 2022. Margaret had a horrific fall as a result of weakness to her legs. At the time she was unaware that ALS was even a possibility, but more symptoms followed: numerous more falls; losing her ability to speak; and difficulties swallowing and breathing. The next two months consisted of doctor and neurologist appointments, with a rapid admission to hospital so that her breathing and nutritional needs could be addressed. While in hospital, a nurse had mentioned to Jim that he should connect with the ALS Society of Alberta. Jim immediately called, while Margaret was in surgery, in fact. From that initial registration, Margaret and Jim’s lives have been forever changed.
As Jim states, “The ALS Society has been the best thing, the best decision we have ever made. We are very thankful to have the hospital bed because of its adaptability. Margaret is now able to sleep comfortably with the head of the bed up so she doesn’t choke when lying flat. The rails are also keeping her safe”. The IV pole supplied by the Society assists with Margaret’s tube feeding, providing her with adequate nutrition, and leading to improved mood and energy. Both Margaret and Jim identify the staff at the ALS Society as very welcoming and helpful in guiding and assisting them through this entire ordeal.
Having these aides in place has allowed them to remain close to one another as they had hoped to while aging. Margaret’s hospital bed lays next to Jim’s in their bedroom where they can continue to be together through the nights. They can still sit together in their living room watching their favorite tv shows while Margaret receives her tube feeds. These are some of the small moments of affection that so many take for granted, that, with one life-changing diagnosis, can make them the most precious moments of one’s life. Jim and Margaret are thankful to you, our community of supporters, for helping to make their home warm and connected while living with ALS.
